Three Years

Today is the 3rd anniversary of my diagnosis with Type 2 Diabetes and Congestive Heart Failure.  Wow, only three years?  It feels like so much longer.  Alas, just three years.  Three years of knowing, caring, surviving, and sharing.

Three years of knowing that I have a two invisible chronic illnesses for which there are no cures.  Three years of knowing that I’m not alone in my fight.  That there are millions of others fighting the same things.  Three years of getting to know some of the most amazing people around.  Lots of love to everyone in the Diabetes Online Community.

Three years of caring more about my well being.  Three years of doing everything I possibly could to beat the odds against me.  Three years of caring for those around me, both online and offline.  Three years of being me.

Three years of surviving the many challenges before me.  Three years of enduring the daily routines required to stay alive.  Three years of painful medical procedures and tests to monitor changes both good and bad.

Three years of sharing my story with the world.  Sharing both my victories and my defeats, showing what it’s really like to live with these conditions.  Sharing the message that it is possible to live well with both. And that there is no shame in being diagnosed with them.

You’ve surely noticed the repetition in this post by now, and you may very well be ready to leave it.  And, honestly, I really can’t blame you.  I’d love to leave it all behind too.  But I can’t.  That’s life with diabetes and congestive heart failure.

Here’s to many more years of knowing, caring, surviving, and sharing.

All the best!

Posted in Diabetes, Health, Heart, Lessons Learned, Life | 8 Comments

Merry Christmas DOC!

Wishing peace, love, joy, and good health to everyone in the
Diabetes Online Community, this Christmas and always.

Lots of Love, DOC!
Mike Durbin

Posted in Cartoons, Diabetes, Humor, Life, Photos, The Adventures of Little G | 9 Comments

A Chat with Alexis of the Blue Heel Society

Every once in a while I have the chance to interview some pretty awesome people from the Diabetes Community.  Over the last week or so, I’ve had the opportunity to chat with my good friend Alexis Newell about a cause near and dear to her, The Blue Heel Society.  Below are the questions and answers that came from our chat.  Enjoy!

Could you please introduce yourself to the readers? Where are you from, etc…?

Hi! My name is Alexis Newell, I am from Brooklyn, New York originally, but I currently live in Las Vegas, Nevada. I am a fulltime working mama and wife. I love all things fashion, and music. I am completely devoted to spreading awareness and advocating for the Diabetes community and for everyone living with the disease. I am beyond thrilled and honored to be “here” to chat with you Mike!

Alexis

What is your connection to diabetes?

I actually have multiple connections to Diabetes.

I am a D mama (woot woot!) of a 9 year old with Type 1 Diabetes. My son, Justice, who is my personal superhero, was diagnosed just a few days after turning 6. He was in DKA, and had what’s called sudden onset Type 1. He went from no symptoms to symptoms and DKA in 72 hours. That is when I became a strong advocate for Type 1 diabetes. I started blogging, tweeting and working with JDRF about a year later. I knew from day 1 it was meant for me to be his mother and him my son. My job is to be his pancreas day in and day out, and to advocate for him whenever necessary.

My grandmother was diagnosed with Type 2 when I was 10 years old. It was later realized that she was a type 1. That was my first experience with carbs, shots, BG checks, etc.

In 2010, my husband was diagnosed with type 2, and just a year later my father.

I had a realization that Type 2 needed awareness and advocacy as well. Sadly diabetes is one of the few diseases where the patient is blamed and ridiculed, especially Type 2.  Diabetes seems to be my calling, in every sense. And I am so in love with the community we have; we are truly blessed.

 

So, what’s this Blue Heel Society that I keep hearing about? – How did that come about? – What’s the mission of BHS? – Who is involved?

Thank you for asking about The Blue Heel Society. We are an advocacy organization designed to focus the spotlight on people who live with or care for a person diagnosed with diabetes. We chose our symbol, The Blue Heel, because we thought that the heel represented what a person living with diabetes, either Type 1 or 2, LADA, gestational….1.5, whichever, must look like to the outside world. The shoe…is just beautiful.

The representation is, that our heels cause pain, discomfort, and a host of other issues not always made visible. We chose the heel as a way of saying people with diabetes do look perfectly fine on the outside. That doesn’t mean a silent war isn’t raging on the inside…and it wasn’t a choice. We can take the proverbial heel off….they can’t. So we agreed that the heel represented our allegiance to promoting awareness and advocacy and helping to ultimately find a cure. And who doesn’t speak “shoe”??

Our hope, with our Society, is to accomplish several goals. Number one on the list is to use the inclusive simplicity of wearing blue shoes to further diabetes advocacy. We intend to foster awareness about the daily difficulties all persons living with diabetes and their caregivers are faced with, including financial and emotional tolls, and use our meet up campaigns…our “Shoe-ins” as a way for people to connect, network, and show support for each other all while uniformly working toward the same goal. It’s inclusive, fun, and it’s an easy way to show love and support without any financial or time commitments. You simply wear a blue shoe. We hope that in doing so, our efforts are one day recognizable world wide. If you see a person wearing the blue shoe, you immediately think Diabetes Awareness and Advocacy. Much like several ribbon campaigns which use a specific color to define who they are advocating so eloquently for and foundations that use sneakers or blue circles…..we all have the same goal. We want a cure for all people living with diabetes.

 

The Blue Heel Society co-founders include myself, Diane Pridmore and Tony Cervati.
Diane Pridmore is a stay at home mom with four kids in Boston. She is active in several women’s groups and civic organizations. She became heavily involved in the DOC after her son was dx with t1 on 3/4/10 at age 3. She remains outspoken about the lack of proper media attention to the diabetes epidemic. She is an avid shoe shopper, addicted to Halloween decorations and once confused John Madden with Steve Madden.

Diane

Tony Cervati is the father of two boys, and has battled Type 1 diabetes for 34 years. He is an active member of the DOC and is known for his blogs about being an endurance mountain bike racer. Last year, Tony was the first Type 1 diabetic to attempt the longest, unassisted mountain bike race in the world, the Tour Divide. He uses social media and twitter to post his blood sugar readings and lives openly about his day to day management with Type 1 diabetes. You can follow Tony on Twitter @type1rider or read his blogs at www.type1rider.org and www.29ercrew.com.

Tony

And then, well, there is the DOC for which we could not be more grateful. They are our support, our sisters, and brothers, our friends, our reason. Without the existence of the Diabetic Online Community we could not have found each other or have found an avenue to channel our passions together. It is these people who take our calls at 2 am, and offer advice and encouragement day in and day out, who make up the real Blue Heel Society

How can other people get involved?

If you want to know how to become involved with our organization….slip your foot into something Blue-tiful and log on….

We can be found at www.BlueHeelSociety.org where we post about our mission and our meet ups. Our inaugural meet up is scheduled for Saturday February 4, in Boston and we are finalizing our venue now…so be sure to check the blog for details. We are on twitter @BlueHeelSociety and we are on Facebook at www.facebook.com/BlueHeelSociety. We have our email and phone numbers listed on all of our media sites so we ask you simply contact us with questions and let us know how we can help in your community. We are in the works putting together a Blue Heel Walk…and so many other fantastic events. Please come check us out!

Is there anything else you’d like people to know about BHS?

We are an advocacy campaign for all kinds of diabetes. No one is left behind or left out!

Type 1 or 2, old or new, ANYONE CAN ROCK A BLUE SHOE!

Many thanks to Alexis for taking time to talk with us about the Blue Heel Society. Take some time to check them out and show some love.

Posted in Diabetes, Interviews, Shout outs | 6 Comments

Strong in the Strength

While seeking peace and comfort in some of my favorite uplifting videos on YouTube last night, I came across this video that really speaks to how I’m feeling right now about what I’m going through.  Yes, my gruff exterior and colorful vocabulary belies the fact that I’m a man of great faith.  And I know that I have not survived the last three years on my own.  On my weakest days, my strength comes from someone else.

Posted in Inspiration, Life | 1 Comment

A Blunt Lancet Christmas Single?

This just in!   MDH News has received unconfirmed reports that Blunt Lancet is set to release a single of their Christmas song, The Twelve Days of Betes, just in time for the holidays.  MDH Entertainment reporter Little G is investigating and will have a full report soon.

Blunt Lancet is the popular 90’s rock band that has staged an impressive come back over the last couple of years.  And this is not the first time we’ve reported on a potential Christmas release from Blunt Lancet.

Last year, the band was rocked by the BetesLeaks scandal, in which a rogue agent of the consulting firm Dewey, Fuck’em & Howe stole the lyrics to the song and shared them on the notorious online site, BetesLeaks.

We are seeking comment from a representative of Blunt Lancet, and will have more on this story as it develops.  In the mean time, here are the lyrics available on their website.

The Twelve Days of Betes

On the first day of Betes my doctor gave to me
The results from my first A1C.

On the second day of Betes my doctor gave to me
Two old brochures and
The results from my first A1C.

On the third day of Betes my doctor gave to me
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the fourth day of Betes my doctor gave to me
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the fifth day of Betes my doctor gave to me
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the sixth day of Betes my doctor gave to me
Six bills for paying
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the seventh day of Betes my doctor gave to me
Seven ways of cheating
Six bills for paying
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the eighth day of Betes my doctor gave to me
Eight goals for meeting
Seven ways of cheating
Six bills for paying
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the nineth day of Betes my doctor gave to me
Nine pumpers pumping
Eight goals for meeting
Seven ways of cheating
Six bills for paying
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the tenth day of Betes my doctor gave to me
Ten fingers bleeding
Nine pumpers pumping
Eight goals for meeting
Seven ways of cheating
Six bills for paying
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the eleventh day of Betes my doctor gave to me
Eleven lancers lancing
Ten fingers bleeding
Nine pumpers pumping
Eight goals for meeting
Seven ways of cheating
Six bills for paying
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

On the twelfth day of Betes my doctor gave to me
Twelve Dexcoms beeping
Eleven lancers lancing
Ten fingers bleeding
Nine pumpers pumping
Eight goals for meeting
Seven ways of cheating
Six bills for paying
Five loads of Bullshit!
Four insulin vials
Three rusty lancets
Two old brochures and
The results from my first A1C.

Posted in Diabetes, Featured, Humor, Shout outs | 9 Comments

Bad News from the Cardiologist

I’ve been struggling with writing this post since I got home Friday night, trying to find the right way share the news I got at the Cardiologist that morning.  There really isn’t a good way or good time to disclose bad news, so, I’ll give it to you straight. No sugar coating, no bullshit.

My appointment on Friday was scheduled so that I could get the results of the most recent round of tests the doctor had ordered.  The results of the Echocardiogram, or ultra sound of the heart, were not only bad, they were shocking.  And might I add, damn right disheartening.

The results indicated that my ejection fraction, which measures the amount of blood pumped out of the heart during each contraction, is down to 35% again.  That’s exactly where it was when I was diagnosed on December 29, 2008.  And it’s disheartening to hear that because I was at nearly 60% just a year ago.  And even more troubling is the fact that we don’t know why.

I take a metric shit ton of medications every day to fight this battle with congestive heart failure.  These are the best and strongest medications available for treating this condition.  I eat well, I get as much exercise as my heart will allow, and generally do what I’m suppose to in order to continue making progress.  And come to find out, it’s evidently not working.   That, my friends, is disheartening.  It begs the question, why bother?

Now, don’t take that statement as any indication that I’m giving up.  Quite the contrary.  There’s a hell of a lot of fight left in me.  But I just don’t get it.  I don’t understand. I don’t know what to think, to feel, to believe.  I’m at a loss.

The next step is to undergo more intensive (read invasive) testing to try and determine what’s going on now, and what the best course of treatment might be going forward.

Right now, I’m as scared of this shit as I was when I was diagnosed. If not a little more so.  I have a lot of questions to which I have no answers.  And what I don’t know can and will kill me.  That’s not negativity, that’s the reality of this situation.  I only pray that we find the answer soon, and that there’s enough fight and strength left in my body to climb this mountain one more time.

Many thanks to all of you who have offered well wishes, hugs, support, thoughts and prayers.  I truly appreciate them all.   Lots of love, my friends!

Posted in Doctor Visits, Health, Heart, Life | 19 Comments

I Want a Heart & Pancreas for Christmas

So I was driving around town today in the rental car I have while my car is in the shop, and the song “I want a Hippopotamus for Christmas” came on the radio.  And given my knack for parodies, I couldn’t help but play with the words.  And so, I came up with the following little diddy.  Enjoy!

I Want A Heart and Pancreas for Christmas

I want a heart and pancreas for Christmas
Only a heart and pancreas will do
Don’t want a pill, to make me a happy boy
I want a heart and pancreas that’ll work and not annoy.

I want a heart and pancreas for Christmas
I don’t think Santa Claus will mind, do you?
He won’t have to use our dirty chimney flue
Just bring them through the front door,
that’s the easy thing to do

I can see me now on Christmas morning,
creeping down the stairs
Oh what joy and what surprise
when I open up my eyes
to see an organ toting hero standing there

I want a heart and pancreas for Christmas
Only a heart and pancreas will do
No blood pressure cuffs, no glucometeruses
I only like hearts and pancreases
And hearts and pancreases like me too

Mom says the organs could pep me up, but then
Doctor could say rejection and I’d be screwed again.

(Short Music Interlude)

There’s lots of room for them in my chest and abdomen
I’d give up anything if they’d work properly again.

I can see me now on Christmas morning,
creeping down the stairs
Oh what joy and what surprise
when I open up my eyes
to see an organ toting hero standing there

I want a heart and pancreas for Christmas
Only a heart and pancreas will do
No blood pressure cuffs, no glucometeruses
I only like hearts and pancreases
And hearts and pancreases like me too

Posted in Diabetes, Heart, Humor, Life | 3 Comments

Forced to Change Meters

Yesterday I spent a little time going through the stack of mail that was waiting for me when I got back from my trip to Louisville for Thanksgiving.  While doing so, I found a letter from my insurance company that informed me that they will be dropping Contour and Breeze test strips from their formulary as of January 1, 2012.  Guess which meter and strips I use.  The insurance company will, however, still continue to offer OneTouch and Accu-Chek strips as alternatives on the formulary.

What it boils down to is my insurance company is forcing me to change to a different meter if I want them to continue paying for my test strips.  I know I should just be glad they are willing to pay for other brands, and I am for the most part, but I really like the Contour USB meter that I’m using and don’t like having my hand forced like this.

Unfortunately, I really can’t afford to pay out of pocket for the Contour strips at the moment, so I don’t have a choice but to switch meters.  Question is: Which option should I choose?

Do I go back to the OneTouch meters that I used for more than a year after I was diagnosed?  I know those meters and was pretty happy with them. On the other hand, I could also switch to one of the Accu-Chek meters.  That’s unfamiliar territory as I’ve never used them, but I’m willing to try them if they work well.

Either way, I’m going to have to acquire the new meters, so I’ll be out the time and effort to do that.  Not to mention the expense.

Ugh, I hate making decisions like this.  What do you all think I should do?  I’m open to suggestions.  Fire away.

 

Posted in Diabetes, Diabetes Awareness Month, Insurance, National Health Blog Post Month, Rants | 8 Comments

Thanks to Everyone – D Blessings Week Day 7

On this 7th and final day of Diabetes Blessings Week, I want to say a big THANK YOU to everyone who participated and helped make this year’s event successful.  I’ve thoroughly enjoyed the posts that I’ve read so far.  It may take me a week or so, but I’ll get through all of them. 🙂

This week has been yet another reminder that I am not alone in my fight with Diabetes and Congestive Heart Failure.  None of us are ever alone in this.   That’s one blessing for which we can all be thankful.

And since it is Sunday, it is quite fitting that this song came to mind.

 

Posted in Diabetes, Diabetes Awareness Month, Diabetes Blessings Week, National Health Blog Post Month | 2 Comments

Blue Friday Fun with the Family

Today is day 5  of Diabetes Blessings Week and I’m here in Louisville, KY for the holiday weekend.  I’m so thankful that things worked out so that I could be here for Thanksgiving yesterday.  And I’m also thankful that I’ve been able to share my Blue Friday fun with my sister and my grandmother, who is also a type 2.  Check out the pictures below.

Thing Type 2 and Buddy the dog

Thing Type Sister

Thing Type 2 Grandma

Hope everyone had a wonderful Thanksgiving and a great Blue Friday!

Posted in Diabetes, Diabetes Blessings Week, Humor, National Health Blog Post Month, Photos | 1 Comment