Diabetes Blessings Week on Hiatus

I mentioned in a tweet the other night that I was considering discontinuing the annual Diabetes Blessings Week blog carnival that I’ve hosted for the last few years.   I mentioned a lack of participation, the abundance of advocacy efforts throughout November and the rest of the year and, most importantly, my struggles with burnout as the reasons.

I’ve given a lot of thought to the decision and the feedback I’ve received since posting those tweets.   And rather than discontinuing the event all together, what I’m going to do is take a break from hosting it this year, and devote this Diabetes Awareness Month to focusing on the issues that I’m dealing with personally.

While it saddens me, I know that this is the best decision at this time.  And, after the dust settles a bit, I’ll look toward planning for next year’s event.

My thanks to all of you who have supported Diabetes Blessings Week the last few years.  I hope you all understand the need for this break, and I hope you’ll join the fun again next November.

Lots of love, DOC.

Mike.

Posted in Announcements, Diabetes Awareness Month, Diabetes Blessings Week | 2 Comments

Unexpected results

Last Thursday I went to the outpatient lab at one of the local hospitals to have blood drawn for an A1c and other routine tests.  I did so in preparation for an appointment with my primary care doctor that I had scheduled for Monday morning.

I had been dreading that appointment because I just knew for sure that the results of my A1c and basic metabolic panel (BMP) would be FUBAR due to the chaos of the previous few months.  And I was fully expecting to catch hell from my doctor as a result.  Much to my relief, neither of those things occurred.

I was quite surprised when the doctor handed me the lab results and I saw that my A1c was 6.6.  It had been 6.5 in May.  Given what I’ve been dealing with the last several months, I was fully expecting a number in the 7’s again.  And I told the doctor so.  After hearing the details of the events of the past few months, she was as surprised as I was by the lab results.  But she told me to keep up the good work.  I didn’t have the heart to admit that there hadn’t been much work done at all.

All of my lab results were good.  And my blood pressure was fantastic during the visit, too.  114/72 is great for me.

I don’t know how to explain the good numbers.  As I said, I was expecting them to be much worse than they were.  All I can figure is that someone must have been watching over me.

I hope the watch continues.


PS:  My sincere thanks to all of you for the outpouring of love and support since my last post.  It means a great deal.  Lots of love to you all.

Posted in Diabetes, Doctor Visits, Health, Heart | 5 Comments

Trying to break the bonds

They say that the first step in solving a problem is admitting that you have a problem.   As difficult as it is for me to do so, I must take this step so that I can begin the process of getting back to being myself.

The last couple of months have been a real struggle.  Watching my aunt die really messed me up mentally, and stirred the “why bother?” demons that I’ve fought with off and on since diagnosis.

I’ve been losing that fight the last 2 months and have finally admitted to myself, and now everyone else, that:

I’m Burned out and Overwhelmed, and that has led to Neglect in my self-care & management of the Diseases I live with, and has resulted in a great deal Self-loathing.

I haven’t had the drive to care for myself as I have been.  For almost 5 years, I’ve thrown myself head first into my treatment and management routines.  Always on top of things.  Yet there are now large gaps in my glucose logs.  And other lapses that just aren’t normal for me.  Let alone healthy.

And as for advocacy?  Well, that hasn’t been a priority either.   Prior to the anniversary post a few days ago, I had not written anything new here on MDH in over a month.  I haven’t been very active elsewhere either.

It’s not that I don’t care or that I’m in denial or anything like that.  It’s that I’m exhausted and overwhelmed.  And right now, I don’t feel that I have anything left of myself to give.

I’m angry at myself.  I hate the feeling that I’m losing control.  I hate feeling weak and that I’m failing.

Eventually, I’ll find my way out of this dark place I’m in and get back to being me.   I have no idea how long that may take, but I’ve taken the first step toward getting there.

I guess that counts for something.

 

Posted in Depression, Diabetes, Health, Heart, Lessons Learned, Life, Mental Health | 20 Comments

Eleven Years

Today, April and I mark our 11th anniversary. It will likely be a low key day as we both have to work this evening. And that’s OK, we started our celebrations at the beginning of September with short trip to Spring Mill State Park over Labor Day weekend. And we have plans to celebrate some more with a couple of day trips in the coming weeks. So, today, low key is perfectly fine.

It’s become something of a tradition for us to have a photo taken during our anniversary trips to mark the occasion. The trip to Spring Mill was no different. A kind woman who was in the park shooting her son’s senior portraits took our photo for us. Our thanks to her for capturing this memory so perfectly.

20131007-195634.jpg

Here’s to many more years of memory making. Happy Anniversary, April. I love you.

Posted in Life | 2 Comments

Ironic Inspiration

So, today is a special Diabetes Art Day, with all creations focused on a central theme of test strip accuracy and safety.  The event is being hosted in collaboration with Strip Safely.

I had been struggling with what to do for this project and, given everything I’ve been dealing with the last month, I had seriously considered not doing anything at all. Then a bit of inspiration came in the mail this morning.

Most in the DOC are aware of the test strip and meter recall that Nova Biomedical announced recently, myself included. Well today, I received a certified letter from them about the recall. And in checking the meter kit they sent me a while back, I discovered that I had received the bad meter and test strips that were recalled.

I found it quite ironic that I received Nova’s recall notice on the day that the Diabetes Online Community is holding an event focused on inaccurate and unsafe test strips. After giving it some thought and reading a comment from Ginger V., I decided to make it the centerpiece of my art project.

20130826-203733.jpg

Seriously, how can we be expected to meet our management goals and be safe when the device manufacturers sell us faulty meters and test strips?  It’s time to raise the standard.  Our lives depend on it.

Posted in Diabetes, Diabetes Art Day, Photos, Shout outs | 2 Comments

Wordless Wednesday: A gift from new friends

 A cool sticker I received from my new friends over at the Young Adult Heart Foundation.

yahf-sticker-photo

Thanks guys!

Posted in Heart, Inspiration, Photos, Shout outs, Wordless Wednesday | Leave a comment

Watching her go

When I wrote my last post, Sometimes a win leads to a loss on Monday, July 22, I did so with the knowledge that my aunt would more than likely die soon.  I knew things looked really bad and that I would more than likely be making the trip to Louisville on Wednesday to say my goodbyes and be with the family.  What I didn’t know how long she might have.  I received that answer firsthand.

After keeping watch over night, I saw my aunt draw her last breath at approximately 8:27 a.m. that Saturday morning.  A quick gasp, a slight groan, and she was gone.

I’ve had so many thoughts and emotions run through me since that moment.   I’m really not sure how to feel or what to think.  If anything, I’m just numb.  I’m struggling to function at all really.  What can I say?  Watching someone die is quite the mind altering experience.   And I know it is going to be a while before things get better for any of us.

On Monday, April attended the funeral of a sweet lady who sang in the community choir with her.  The program for her service had an insert bearing the poem below.  The words spoke to me as they help put what I experience with my aunt into perspective, and I felt compelled to share.

There is no death

I am standing on the seashore.  A ship at my side spreads her white sails to the morning breeze and starts for the blue ocean.  She is an object of beauty and strength, and I stand and watch her until at length she is a speck of white cloud just where the sea and sky come to mingle with each other.

Then someone at my side says, “There! She’s gone!”  Gone where?  Gone from my sight, that is all.  She is just as large in mast and hull and spar as she was when she left my side, and she is just as able to bear her load of living weight to her destined harbor.

Her diminished size is in me, not in her.  And just at the moment when someone at my side says, “There! She’s gone!”, there are other eyes watching her coming, and other voices ready to take up the glad shout, “There she comes!”

And that is dying.   — Henry Jackson van Dyke

I truly appreciate all of the warm thoughts and prayers that have poured in during the last week.  They mean more than I can tell you.

Lots of Love to you all!

Posted in Lessons Learned, Life | 8 Comments

Sometimes a win leads to a loss

Bitter.  Discouraged.  Helpless.  Morose.  Worried.   All words that can be used to describe my current state of being.

Some of you may be aware that I have an aunt who has been battling cancer.  And some may have seen my tweets and Facebook post last month about the exciting news that the latest round of tests showed the cancer was gone.

Sometimes, though, winning against cancer (or any serious illness really) still leads to a loss of life.  Complications from treatments take their toll.  And sadly, that appears to be what’s happening with my aunt.  Treating the cancer in her neck has wrecked her salivary glands, and that combined with constant problems with her feeding tube have made it extremely difficult for her body to get the nourishment needed to help her body heal.

I received an update last night that things were looking bad, and as of 6:30 p.m. this evening, my aunt was being transported to the hospital.

I try to hold out hope that something can be done to help her.  To keep her with us.   Having watched April’s mom die of cancer last year, and having been through similar situations with other family members, I’m no stranger to the process and what’s coming.  But that doesn’t make things any easier.

I’m bitter.   I’m incredibly angry that another family member has gone through this horrible disease.

I’m discouraged that she appears to have beaten the disease itself, yet could still die from the fight.

I feel helpless, knowing that there’s not a damn thing I can do from where I am.  There’s not really anything I could do if I were down there, either.  I mean, other than raise hell with the doctors and push for them to do something.

I feel a bit morose.  I didn’t want to write this post, but needed to get the thoughts out of my head.  As I said, I’m all too familiar with this kind of situation, but that doesn’t make it any easier.

Worried? Yeah, I’m definitely worried.  I’m worried about the hell that my aunt is going through.  I’m worried about my grandmother who is doing everything she can to help her daughter fight for her life.  I’m worried about my mother who is doing what she can to help her sister, while also trying to keep working and maintaining things at home.  I’m worried about the family in general.

And, if I’m being completely honest, I’m more than a bit worried about the affect all of this is having on me.

For now, I wait for the next update and I hope and pray for the best.  And, if I may, I ask that you do the same.

Posted in Lessons Learned, Life | 26 Comments

Wordless Wednesday: Sugar Free Journey

Click to visit the author's website.

Currently reading Sugar Free Journey by Naomi Kingery.

Posted in Diabetes, Photos, Shout outs, Wordless Wednesday | 3 Comments

Wordless Wednesday: Medical Bling

20130703-142223.jpg

My new necklace and the broken bracelet it replaced.

Posted in Diabetes, Health, Photos, Wordless Wednesday | 1 Comment