Wishing a Happy and Healthy 2016 for everyone in the Diabetes Online Community. Cheers!

Wishing a Happy and Healthy 2016 for everyone in the Diabetes Online Community. Cheers!

Today is the 7th anniversary of my diagnosis with Type 2 Diabetes and Congestive Heart Failure. Wow, only seven years? It feels like so much longer. Alas, just seven years. Seven years of knowing, caring, surviving, and sharing.
Seven years of knowing that I have a two invisible chronic illnesses for which there are no cures. Seven years of knowing that I’m not alone in my fight. That there are millions of others fighting the same things. Seven years of getting to know some of the most amazing people around. Lots of love to everyone in the Diabetes Online Community.
Seven years of caring more about my well being. Seven years of doing everything I possibly could to beat the odds against me. Seven years of caring for those around me, both online and offline. Seven years of being me.
Seven years of surviving the many challenges before me. Seven years of enduring the daily routines required to stay alive. Seven years of painful medical procedures and tests to monitor changes both good and bad.
Seven years of sharing my story with the world. Sharing both my victories and my defeats, showing what it’s really like to live with these conditions. Sharing the message that it is possible to live well with both. And that there is no shame in being diagnosed with them.
You’ve surely noticed the repetition in this post by now, and you may very well be ready to leave it. And, honestly, I really can’t blame you. I’d love to leave it all behind too. But I can’t. That’s life with type 2 diabetes and congestive heart failure.
This post was originally written in 2011 in response to a prompt from the National Health Blog Post Month writing challenge. I’ve been considering the future of my online diabetes activism lately, and I felt this worth sharing again.
Prompt: The future of online activism. Our favorite social media sites are constantly undergoing renovations to become quicker to navigate, easier to interact with, all encompassing, mobile, and everywhere. Imagine the same thing about your community – how will they evolve, improve, and grow?
I may have an interesting blue scar on my forehead, but I’m no wizard or magical being with a crystal ball which will show me what the future holds for online diabetes activism, advocacy, what ever. Frankly, I don’t need a crystal ball to know this one thing:
As long as there is no cure for all types of diabetes, as long as we are still fighting this awful disease, there will be online diabetes activism.
We will continue our efforts to raise awareness, to educate the public about the realities of the types of diabetes, to combat the myths and BS that we deal with every day.
We will continue to support each other in our fight to live a long and fulfilling life with the various types of diabetes. We must keep fighting for a cure, but we must live the best life we can until we get to that goal.
Ultimately, we will continue to be the Diabetes Online CommUNITY!
My second visit with the new endocrinologist was Tuesday afternoon. The appointment went rather well. My blood pressure was great. I’ve lost 5 pounds since my last visit. The A1c that was done in the office today read 6.8, down from 7.5 at last check. That was a nice surprise. Clearly, the changes that were made during my first appointment are making a difference, and I’m doing better than my mind will allow me to believe.
Doc D. made on minor adjustment to my meal time insulin regimen, and really wants me to focus on dietary changes, but other than that, he was happy with the progress that I’ve made. Hell, I told him that, in my mind, the biggest improvement that I’ve made in the last couple of months is that I’ve finally gotten myself back into my routine for checking my blood sugars and taking all of my medications consistently. Everything else will fall into place as I go along.
Unfortunately, there was some bad news that came from the appointment.
It seems as though Doc D. will be leaving the practice here and relocating to the state of Washington sometime in November. I will be referred to another doctor in the office, possibly one of the nurse practitioners. To say that I’m upset about that news would be an understatement. This was only my second visit with Doc D, but I liked him and had high hopes that he was going to be a good fit for me. Now, I’ll never know. I’ll just have to wait and see how things go with the next doctor when I go back in January.
While I am upset about Doc D. leaving, I must say that I am grateful that our paths crossed, however briefly. The changes that he made in my treatment regimen have made a big difference in how I’m doing with things and I’m now set on the right track again. I appreciate his time and care, and I wish him well in his next adventure.
All the best!
Today is Diabetes Social Media Burnout Blog Day. And guess what? My mind is extra crispy right now.
I’ve been trying to find the words for a post on how I’m feeling, but they elude me. My dear friend, Mike Hoskins, suggested using an image instead. Smart guy, that one. Why the hell didn’t I think of that?
So, here you go. This is how I’m feeling today. Like a candle that has been blown out. The flame gone, yet embers remain that could be rekindled with some effort. I just don’t have it in me today.
Others in the DOC have approached this far more eloquently than I have, and I very much appreciate their efforts. You can find them here. http://www.diabetesdaily.com/blog/2015/09/diabetes-social-media-burnout-blog-day/
So, you know that endocrinologist appointment that I was panicking over last week? Well, I survived it. In fact, it went better than I feared it might. I do have some reservations about it, but I’ll get to those in a bit. First, the good parts.
Doc D. is a young guy, maybe 34 years old at most. I’m 31, so we’re close in age. He was attentive, listened, and took the time to get to know me and my situation. He asked a lot of questions and documented my responses as we went along. I appreciated how thorough he was, and the fact that he took the time to process my information and put his recommendations in writing before he tried to explain his thinking behind them.
He revised my meal time insulin regimen, giving me a coverage plan that is more logical and better suited to my needs. That should help a lot. He left my Lantus and Victoza doses alone. He also prescribed the oral type 2 drug Jardiance for me to try, and suggested that I add a coenzyme Q10 supplement to help strengthen my heart and increase my energy levels.
Doc D. also said he wants to check my pancreas output with a c-peptide test. He was a bit surprised that I’d never had one. And since he was ordering tests, I requested that he order GAD65, IA-2, and insulin auto-antibody tests while he was at it. I practically begged my PCP to run those tests, but they were never done. Now, they will be. So, I have that bloodwork to look forward in two months.
He took his time and didn’t rush through the appointment. That was huge in my mind.
And…. AND…. There was no mention of my weight at all. Let that sink in for a second… The doctor did NOT focus on my weight at all. I’m really not use to that. I was honestly kind of shocked.
His focus was more on nutrition. Eat better, the benefits will follow. Hey, I agree with that logic. I know it works. But the means of getting there are where some of my reservations begin.
Doc D. is something of a paleo diet evangelist and strongly “encouraged” me to adopt that diet and to severely restrict my carb intake. He wants me to give up a lot of things that I’m just not sure I’m willing to ditch completely. I have a real problem with having to deprive myself of the things I love, and I have no desire to go back to starving myself like I did for months after I was diagnosed. While the results at that point may have been beneficial for a while, it ultimately lead to a major crash and burnout. I don’t need that again. I’m willing and wanting to make some changes, but I’m not sure the paleo diet bible is one that I’m willing to thump. And I’m certainly not going to be beaten over the head with it.
The other major reservation that I have concerns the drug Jardiance that I mentioned above. I had never heard of it, but through some research I’ve learned that it’s basically Lilly’s version of Invokana. It’s an oral type 2 drug that is supposed to help my body dump excess sugar when I take a leak. I’ve heard mixed things about that class of drugs and I’m incredibly leery about starting it.
I have two issues with this. One, yeast infections are listed as common side effect of this medication. If you’ve read my story, you know that’s what lead to my diagnosis in December 2008. It’s understandable that I wouldn’t want to venture down that road again. Secondly, do I really need another medication on top of what I’m already taking to treat my diabetes? I’m already taking Victoza, Humalog and Lantus. I think that’s enough. And I’ll spare you a rant about the additional monthly cost of that medication and the CoQ10 supplement.
So overall, the appointment went well. I have some strong reservations about some things, but there were some really positive things that came out of it. I’ve got some clearly defined goals to work on as far as my A1C goes, a better insulin regimen, a new supplement that seems to be helping to boost my energy, and hopefully a doctor who will be the same at the next visit as he was at the first. He listened, he was thorough, and didn’t leave me feeling judged. I see him again in September.
Time will tell.
“Nobody expects the Spanish Inquisition! … Our chief weapon is surprise, surprise and fear.” – Monty Python’s Flying Circus

Call me Nobody. I expect the endo-quisition.
Tomorrow morning I have my first appointment with an endocrinologist. For the last six and a half years, the management of my type 2 diabetes has been overseen by my primary care doctor. Due to some progression, changes that I want to make in my treatment regimen, and lack of knowledge on the doctor’s part, I’m switching to an endo.
When the idea of changing doctors first came up a couple of months ago, I was actually kind of excited and was looking forward to to working with someone new and getting a fresh perspective on things.
As I sit here now, working on the questionnaire that I have to complete for the appointment, I find myself filled with anxiety and fear. Fear of the unknown. What will this new doctor be like? Will he be understanding of my situation and willing to work with me, or will he be dismissive and judgmental. Lots of what ifs in my mind. And lots of defensive responses forming to the judgment and criticism than I fear may be coming.
And if I’m being honest, I’m feeling some guilt and self loathing. It’s no secret that I’ve been struggling for month and haven’t been on top of things as I had been. And all of the questions I’m responding to are painful reminders of that. If I’m feeling like this now, how the hell am I going to get through the appointment with the endo tomorrow?
I hope I’m wrong. I hope the doctor will be kind and understanding and everything else I need. I hope I’m pleasantly surprised and my anxiety and fears will be for nothing.
But should the inquisition come, I hope I don’t completely lose my shit in that office. I’m not holding my breath.
To be continued…
Diabetes Blog Week, Day 7 – Topic: Continuing Connections. The very first inspiration for Diabetes Blog Week was to help connect our blogging community, and that continues to be the most important reason it’s held every year. So let’s help foster and continue those connections as we wrap up another Dblog Week. Share a link to a new blog you’ve found or a new friend you’ve made. Or pick a random blog off of the Participant’s List, check it out and share it with us. Let’s take some time today to make new friends.
Well, here we are. It’s the last day of the Sixth Annual Diabetes Blog Week, and the topic of the day is about sharing connections that have been made during the week. Talking about new blogs discovered and friendships formed.
I’ve read so many great blogs this week, a number of which haven’t been around very long and haven’t participated in Diabetes Blog Week before. And one such blog caught my attention early on.
The blog is The Trials of Type 2 Diabetes, and it’s written by fellow type 2 Brian Cohen. Some in the Diabetes Online Community may know him better as Brian_BSC and as an active member and admin over at TuDiabetes. While I had seen Brian’s name and writings during my occasional visits to TuDiabetes, I didn’t know much about him or his story, nor had I interacted with him.
I’m thankful to say that has changed this week, as I’ve had a chance to get to know Brian a little better through his new blog. I admire his “take the bull by the horns” approach to getting stuff done when it comes to what’s best for his diabetes care. I’m very much the same way.
I’m also quite impressed with Brian’s writing as well. This blog post, Changing the Misunderstanding of Type 2 Diabetes, is one of the best pieces that I’ve ever read on type 2 diabetes and the stigmas that surround it. If you haven’t read it yet, take the time to do so, and then share it with everyone you know.
I look forward to reading more of Brian’s blog and getting to know him better as time goes on. I wouldn’t mind meeting him in person at some point either. He’s good people. And someone I now consider a friend.
My hat’s off to all of you
As I wrap up my final post for Diabetes Blog Week 2015, I’d like to salute everyone who participated this year.
Simply put, I admire each and everyone of you. Every person and every blog, no matter the type, background, etc… is part of my life with diabetes, and my life is much richer as a result.
If I were to express admiration for any one set of things that every blogger has in common it would be for the strength and courage each person displays in opening their hearts and sharing his or her experiences in living with diabetes. It takes great strength and courage to open up and share things that may be perceived as a weakness in this world that is all too often uncaring and cruel.
And I would be remiss if I didn’t thank you all for inspiring me to do the same. If it weren’t for the inspiration I gained from reading the experiences of fellow PWD’s, My Diabetic Heart wouldn’t exist.
And finally, many thanks to Karen for hosting DBW again this year and to everyone who helped her organize it. It’s been great.
Lots of Love, my friends!
Diabetes Blog Week, Day 6 – Topic: Favorites and Motivations. If you have been blogging for a while, what is your favorite sentence or blog post that you have ever written? Is it diabetes related or just life related? If you are a new blogger and don’t have a favorite yet, tell us what motivated you to start sharing your story by writing a blog?
You know, picking a favorite blog post from among the 445 that I’ve written over the last 6 years is no small task. That’s a lot of material to review and think about. As I’ve looked back through the archives, more than a dozen stand out as worthy of being considered favorites. And wouldn’t you know it, most of those posts were written during previous Diabetes Blog Weeks. But how can I choose just one? Well, I can’t.
I have, however, narrowed the list down to three favorites. One motivational, One sentimental call to action, and One hilarious letter. I’ve included all three below. So grab some popcorn and a diet coke, then sit back, relax, and enjoy!
For Our Families and Ourselves – Diabetes Blog Week 2013, Petitions.
There’s More to Life
When living with chronic health issues that require constant attention, it is easy to become so consumed by those thoughts that we lose sight of the fact that there’s more to life that just those health issues. Sure, they are always with us, but they should not be the center of attention all the time.
I much prefer to devote my time and attention to the people and things in my life that are the most important to me. Like April and the time we get to spend together.
For the past few years, April has talked about the idea spending a day at a local park, just lying under a tree and enjoying being out in the beautiful weather. Maybe take the camera along and take pictures of the blossoms on some of the trees. For one reason or another, though, that never happened. Well, not until last Sunday afternoon, anyway.
The idea came up in conversation that morning and since the weather was beautiful that day, we decided to jump at the opportunity to go. So, we grabbed a blanket, our cameras, and a sandwich to share from Subway, and went to the park for an impromptu picnic. As you can see, we found a nice place on a hill beneath a couple of trees to pitch our blanket.
Oh sure, I checked my blood sugar and took my dinner time injection of Byetta before I started eating, but as soon as that was out of the way, my diabetes was pushed to the back burner and my attention returned to what was really important at the moment, April and our time together.
We had our meal and spent a while just laying on the blanket, taking in the view of our surroundings. And before we left the park, we took pictures of the blossoms on the trees and managed to snap some shots of each other in the process. It was a lot of fun.
It’s so important to remember that our loved ones also endure a lot of grief because of the health issues with which we are diagnosed. I’m quite thankful that I’ve had April by my side through my battle with congestive heart failure. I know that it has been every bit as scary for her as it has me. And, like all spouses of PWDs, April has dealt with the crap that goes along with that role, too. The highs, the lows, and the god awful mood swings, too.
So, anytime there’s an opportunity to do something fun that allows us to think beyond those other things, we jump on it. And we do our best to enjoy every minute we have during those times.
April finally got the day in the park that she’s wanted for so long and I got a souvenir of that day. My new favorite photo of her.
The Pledge
We, the undersigned, acknowledge and understand that we, as PWD’s, are not the only people affected by the disease with which we have been diagnosed. That our loved ones endure the struggles of this diagnosis along side us. We pledge to remember this, to show appreciation for their support, and to support them in return.
We, the undersigned acknowledge and understand that there is much more to life than diabetes and that it is important to take every opportunity to enjoy life in the moment. We pledge to stop and smell the roses and make memories, like the one above, as often as possible.
We, the undersigned, pledge to always remember the importance of making time for our families, and for ourselves.
Signed,
Mike Durbin. (And hopefully everyone who reads this. 🙂 )
Mantras, Reminders, and Walks in the Woods – Diabetes Blog Week 2014, Mantras and more.
On my worst days with diabetes and congestive heart failure, when everything seems to be going wrong and I’m ready to give up, I try to remember how far I’ve come since I started on this journey. I try to remember the struggles I’ve overcome this far and the strength and determination it took to do so. I try to use that as assurance that I can get through the difficulties before me. I say try because some days it works, and other days it makes no difference at all.
Some days, looking back through my blog archives for inspirational quotes that I’ve shared helps. This quote from a post in 2012 has become something of a mantra or motto. It’s certainly fitting.
“A little heart can do big things.” – me
Some times, though, I really just have to take the time to remember who I am. I have to look inside myself and reconnect with the person that I know I am.
I am a strong, confident, caring, loving, and passionate man. I have a sound mind, and a strong spirit. I am well educated; possessing the knowledge and abilities needed to make it in this world. I am strong willed; filled with a sense of determination and endurance that will carry me through all situations. I am filled with respect, not only for others, but more importantly, for myself.
I’ve had more than my share of those days recently. And I’ve spent a great deal of time trying to reconnect and thinking things through. I’m making progress. Slowly but surely.
Over the last few months, I’ve found that the absolute best thing for helping my mood and clearing my mind is spending time hiking the trails at the many nature preserves in the area. And now that the weather is nicer, that’s how most of my days off from work are being spent. I take my nature and trail guides, camera, notebook, walking stick and water, and hit the trails. I stay out for hours at a time. And it helps a lot.
And taking my camera along on my walks in the woods has provided plenty of material for a new photo blog that I’ve been working on lately. Check out SparrowTreePhotography.com when you have a minute. I’d love feedback on my work there.
One last quote. It’s one of my favorites.
“Life is not a journey to the grave with intentions of arriving safely in a pretty well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out and loudly proclaiming … WOW! What a ride!” ~ Author Unknown
An Angry Letter to D Pig – Diabetes Blog Week 2011, Letters.
Recently, last night in fact, I returned home from work to discover that a secret meetup of epic proportions was taking place under my own roof. Little G, that stealthy diabetes ninja warrior, and his high flying superhero friends, the Angry BirDies, had gathered to plot the demise of their evil green nemesis, D Pig!
At the conclusion of the secret conclave, the fuzzy little bad asses issued a warning letter for their enemy. They granted permission for the letter to be published in its entirety.
Diabetes Blog Week, Day 5 – Topic: Foods on Friday. Taking a cue from Adam Brown’s recent post, write a post documenting what you eat in a day! Feel free to add links to recommended recipes/shops/whatever. Make it an ideal day or a come-as-you-are day – no judgments either way.
Folks, I sat down with the intention of writing a serious post about an ideal day, but I just can’t get it out. And since my computer shutdown and performed updates in the middle of my writing, my thoughts are even more scrambled, and I’m less inclined to try anymore. So, I’m adding this one to the f**k it list and calling it a day.
But I can’t leave you without something to think about. That’d be wrong. So, I give you a picture of a bacon cupcake known as The Sweet Oinker.
The Sweet Oinker is a delightful confection, made up of a pecan cupcake that is topped with a maple buttercream frosting and, of course, bacon.
It is an intriguing combination of two of my favorite foods, bacon and cupcakes. It’s not for everyone, but I like it. It makes me happy. And that’s what matters.
Lots of love!